After a few weeks in the main hospital, Lydia has been transferred to our local hospital where some nights we can have our community carers to come and sit with her overnight while we go home and sleep. This happened last weekend and we were home for all of 2 and a half hours before…
It hasn’t changed! Lydia is poorly again, and the hospital hasn’t changed – after our longest healthy and hospital free period with her of 10 months she picked up something that would leave you and I with a cough and a bit of a groggy feeling for a week. However, the same thing leaves Lydia…
A post of Christian concern. This week I finished teaching a group study in 1 Thessalonians 5 and the practical importance of this verse was made clear to me not only from the study but by many things I have seen in the "Christian world". 1 Thess 5:20-22 Do not quench the Spirit. Do not…
Not the most creative title I know, and I’m not talking about my post by the way. I’m talking about life dealing with medical conditions. Everybody is working hard in the race of life and some people’s race track is bumpier than others. Maybe you’ve found yourself running around in circles for years never realising…
When disability rocks a household, you enter a world of complete uncertainty
I know it’s a bit typical at this time of year to see a review of the year, but it can be a very helpful thing as looking back is the best way to see how far you’ve come. Here’s a little review and 3 thankful things: Last Christmas we escaped hospital on Dec 24th…
Just think of the insanity of a world where we were so self-involved that we don’t notice that we’d made it impossible for a disabled person to access a hospital
At least from my perspective* As a follow-up to my blog post “Things for Mums to know about Dads” I’m hoping to share what I think I’ve learned vice versa – Mums forgive me if I have completely misrepresented you, but this is a man’s perspective. Just listen to her If you’ve read the “Things…
We’re different! Ok you already knew that didn’t you? I’m sure you did but it does sometimes slip our mind to remember that Men and Women, Dads and Mums are different, particularly in a stressful environment like dealing with disability in a family. My Wife and I have always been best friends as well as…
This week we celebrated Lydia’s 3rd birthday. What a joy it is to watch her grow and celebrate as she had her favourite people around her, gifts to unwrap and toys to play with, all enough to tire her out for an early and full nights sleep. As I watched her play and enjoy that…
