This week is tube feeding awareness week 10th - 14th February.I know, every week seems to be an awareness week for something, it even seems that some awareness weeks overlap one another, unfortunately this probably causes the opposite of the desired effect as people take less notice of one awareness week in a sea of…
This week, the first case has been confirmed in our city of this new strain of coronavirus, and at the same time the powers that be have said that if it becomes a pandemic there may not be treatment for people that would be considered less likely to survive – that is probably our little…
There are a lot of emotions and stresses when raising a child with disability, its good to talk about these things and get them off of your chest – so why is it so hard to do it? My wife sometimes tries to pry out what I’m thinking and feeling as we go through a…
After a few weeks in the main hospital, Lydia has been transferred to our local hospital where some nights we can have our community carers to come and sit with her overnight while we go home and sleep. This happened last weekend and we were home for all of 2 and a half hours before…
It hasn’t changed! Lydia is poorly again, and the hospital hasn’t changed – after our longest healthy and hospital free period with her of 10 months she picked up something that would leave you and I with a cough and a bit of a groggy feeling for a week. However, the same thing leaves Lydia…
A post of Christian concern. This week I finished teaching a group study in 1 Thessalonians 5 and the practical importance of this verse was made clear to me not only from the study but by many things I have seen in the "Christian world". 1 Thess 5:20-22 Do not quench the Spirit. Do not…
Not the most creative title I know, and I’m not talking about my post by the way. I’m talking about life dealing with medical conditions. Everybody is working hard in the race of life and some people’s race track is bumpier than others. Maybe you’ve found yourself running around in circles for years never realising…
When disability rocks a household, you enter a world of complete uncertainty
I know it’s a bit typical at this time of year to see a review of the year, but it can be a very helpful thing as looking back is the best way to see how far you’ve come. Here’s a little review and 3 thankful things: Last Christmas we escaped hospital on Dec 24th…
Just think of the insanity of a world where we were so self-involved that we don’t notice that we’d made it impossible for a disabled person to access a hospital
